Welcome!
Thank you for visiting our site, dedicated to cure our daughter Dylin from Polycystic Kidney Disesase.
Polycystic Kidney Disease is the most common genetic, life threatening disease affecting more than 600,000 Americans and an estimated 12.5 million people worldwide - regardless of sex, age, race or ethnic origin. In fact, PKD affects more people than cystic fibrosis, muscular dystrophy, hemophilia, down syndrome and sickle cell anemia COMBINED!
Polycystic means mulitple cysts. In effect, PKD denotes muliple cysts on each kidney. These cysts grow and mulitply over time, also causing the mass of the kidney to increase. Ultimately, the diseased kidney shuts down causing end-stage renal disease for which dialysis and transplantation are the only forms of treatment.
PKD comes in two forms. Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common, affecting 1-in-400 to 1-in-500 adults. Autosomal Recessive Polycystic Kidney Disease (ARPKD) is far less common, affecting 1-in-10,000 at a far younger age, including newborns, infacts and children.
When you look at our child from the outside, you'd never guess in a million years that anything is wrong. She is beautiful, active and has a personality like no other. But on the inside, the disease is progressivley getting worse. She is a MIRACLE CHILD. We know God has a special plan for her. She has beaten all odds since she was born. We were told to be prepared of a still-born, then that changed to "maybe she'll live for a month," "okay maybe a year".... she has now puzzled so many Doctors, they just sit back and watch how wonderful this medical mystery child is doing.
Too many children & their families are suffering from this disease and we can not be naive to think we will never have "our day."
There is no treatment or cure of this disease, please help us CURE OUR DYLIN!!
Polycystic Kidney Disease is the most common genetic, life threatening disease affecting more than 600,000 Americans and an estimated 12.5 million people worldwide - regardless of sex, age, race or ethnic origin. In fact, PKD affects more people than cystic fibrosis, muscular dystrophy, hemophilia, down syndrome and sickle cell anemia COMBINED!
Polycystic means mulitple cysts. In effect, PKD denotes muliple cysts on each kidney. These cysts grow and mulitply over time, also causing the mass of the kidney to increase. Ultimately, the diseased kidney shuts down causing end-stage renal disease for which dialysis and transplantation are the only forms of treatment.
PKD comes in two forms. Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common, affecting 1-in-400 to 1-in-500 adults. Autosomal Recessive Polycystic Kidney Disease (ARPKD) is far less common, affecting 1-in-10,000 at a far younger age, including newborns, infacts and children.
When you look at our child from the outside, you'd never guess in a million years that anything is wrong. She is beautiful, active and has a personality like no other. But on the inside, the disease is progressivley getting worse. She is a MIRACLE CHILD. We know God has a special plan for her. She has beaten all odds since she was born. We were told to be prepared of a still-born, then that changed to "maybe she'll live for a month," "okay maybe a year".... she has now puzzled so many Doctors, they just sit back and watch how wonderful this medical mystery child is doing.
Too many children & their families are suffering from this disease and we can not be naive to think we will never have "our day."
There is no treatment or cure of this disease, please help us CURE OUR DYLIN!!
