November 2008 - She’s amazing! Her heart is doing GREAT! Thank you Dr. Mayman. 

September 2008 - 2 days before our 4th annual walk, Dylin started to encounter high blood pressure. Please continue to pray for her health. She has an appointment with her cardiologist next week. She is borderline starting medications to control her blood pressure, we pray that it goes down and she will not have to take any medications.

 July 2008 - We have started to upload videos of Dylin & news casts on Youtube.com. Please visit her’s, it’s called Cure our Dylin. 

May 2008 - Good new and not so good news….  Tyler and Jordyn’s kidney ultrasounds are clear! No signs of anything. We will continue to check every year.  As for Miss. Dylin, her original cyst that was found in utero has now grown so large, it is covering most of her right kidney. We are waiting to hear the next steps in what tests we may have to do to see if it is damaging her kidney yet.  This is not common. Most kidneys are covered in mass little cysts that cluster.  Once again, Dylin is the odd child in PKD. Odd has been good for us thus far, as she is still one of the healthiest children, so we will continue to pray that this too will not affect her in any negative way. 

May 2008 - Dylin saw her nephrologist today and since her blood pressure has remained normal for quite a while, we will hold off on testing. She was due for an MRA (brain scan) and blood work, but at this time she will only have an ultrasound next week along with Tyler & Jordyn. Tyler & Jordyn have ultrasounds yearly to make sure there are no signs of PKD with them. Cross your fingers! 

Sept 2007 - Dylin had her cardiologist tests done. Her heart looked fabulous! I must say Dr. Mayman is amazing and that was the easiest doctors visit we have EVER had. Dylin’s blood pressure was slighlty above normal, but we will continue to monitor that at home. She likes to scare us every once in a while - stinker!

June 28, 2007 - Dylin is three!!  She has done so well that even her doctors/specialists are baffled by her healthy little body. We have met a few children that are around her age that take anywhere from 10-19 medications a day! We are very blessed that Dylin is doing so well.

As a baby she encountered high blood pressure. We began monitoring her BP at home while while she slept. Her nephrologist questioned whether or not to have her on medication. After spreading the word to family and friends, we had a prayer and fast for Dylin. The very next morning, we met with Dr. Aigbe and sure enough, Dylin’s blood pressure lowered over 20 points and has remained normal ever since.

Dylin’s nephrologist and cardiologist see her every six months. Her creatinine (kidney function) remains normal. She has yearly ultrasounds, heart tests, and will soon have a brain scan as PKD can cause aneurisms.